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This beautiful family won an auction for a session I donated to the Museum at Stony Brook Holiday Gala. We have been trying to get together for months! I am so glad that everything fell into place since K is off to college and this was our last chance to photograph the entire family before her departure. I had a wonderful time with you guys and will have your online gallery up very soon. And thanks for your support of the Museum.
As many of you know who have seen my site, I am involved with a charity called Hope for Javier. (For some reason my links are not highligted in this post. If you want to know more about Hope for Javier please click on the bold text to go to his site) Javier is a beautiful, almost 5 year old little boy whose mom and dad are good friends of mine. Javier has a hideous form of Muscular Dystrophy called Duchenne. Duchenne’s is one of the rarest types of MD and effects only boys. At this time, there is no cure for Duchenne but Javier’s family, friends and the Duchenne community are trying to do something about that. If you are looking for a charity to donate to this is a mighty good one. These donations will go to fund the research that needs to be done so that there will indeed be Hope for Javier.
As a personal project I am chronicling Javier’s journey. Yesterday Javier was measured for his first wheelchair. As you will see in these photos Javier can walk now but he gets tired easily. He starts kindergarten this year and will need his chair to make it through the day at his new school. Javier’s parents have done a heroic job of making getting measured for his first chair an exciting adventure. Of course they are putting on an Oscar winning performance because their hearts are breaking at this new milestone, and so is mine…
A geneouse photographer, Kristen Kalp started the Giving is Awesome campaign and I am delighted to be a part of it. So far over $300,000 worth of custom photography has been pleged by photographers all over the word.
Here is how it works.
The follow is from Kristen’s blog: You know someone. You know someone who’s experienced a tragedy, is struggling to stay afloat, is raising kids while holding down more than one job, or is volunteering selflessly despite extenuating personal circumstances. You know someone who can’t afford custom photography, but who would cherish it this holiday season. You know someone who deserves a year-round reminder of their family’s spirit, love, and beauty.
You know someone. I guarantee it.
If you do know someone as Kristen so eloquently put it, let me know. I want to know who they are and their story. The winning entry will receive a family photography session, a custom book, DVD slide show and a $300 print credit valued at $1200.00.
The person who nominates the winner receives a family session and print credit worth $500. So please, if you know a deserving family, send their story to me.
The rules:
* You cannot nominate yourself, and the person nominated must sincerely be incapable of purchasing my services.
* The nominee must reside in the New York metro area. (Check out the Giving Is Awesome site for photographers all over the country) Tell me who you know, what they’re experiencing, and why they deserve my artwork. Please include a way to contact both your nominee and yourself as well.
* You must e-mail me the full story : scmassey@gmail.com
The winner will be announced on Christmas Eve — get nominating! I can’t wait to read all of your entries!
Open your heart to someone this holiday season — and thanks for giving me the opportunity to open mine.
With love,
Steph