As many of you know who have seen my site, I am involved with a charity called Hope for Javier.   (For some reason my links are not highligted in this post.  If you want to know more about Hope for Javier please click on the bold text to go to his site)   Javier is a beautiful, almost 5 year old little boy whose mom and dad are good friends of mine.  Javier has a hideous form of Muscular Dystrophy called Duchenne.  Duchenne’s is one of the rarest types of MD and effects only boys.  At this time, there is no cure for Duchenne but Javier’s family, friends and the Duchenne community are trying to do something about that.  If you are looking for a charity to donate to this is a mighty good one.   These donations will go to fund the research that needs to be done so that there will indeed be Hope for Javier.

As a personal project I am  chronicling  Javier’s journey.  Yesterday Javier was measured for his first wheelchair.  As you will see in these photos Javier can walk now but he gets tired easily.  He starts kindergarten this year and will need his chair to make it through the day at his new school.  Javier’s parents have done a heroic  job of making getting measured for his first chair an exciting adventure.  Of course they are putting on an Oscar winning performance because their hearts are breaking at this new milestone, and so is mine…